Time to go!
Friday, October 31, 2008
Time to go!
What do we have in here?
Cool, a Treo. Now I can text everybody and wish them a Happy Halloween!
Say it with me... Awwwwww!
If it looks like a duck, and walks like a duck...
Duck on the run
Wednesday, October 29, 2008
Friday, October 24, 2008
So far she's handling it like the star that she is and we haven't had any issues with eating. I'm praying that it stays that way, and for a speedy recovery.
Once again, I'm asking if you would pray with me.
Thursday, October 23, 2008
Wednesday, October 22, 2008
One day, Elise was having a Terrible-Horrible-No-Good-Very-Bad-Day of the Alexander variety. Things just were not going her way, and she would throw herself on the ground and sob her little heart out. And I admired the fact that she could do this. My day wasn't going too swimmingly and I was tempted to join her. Why shouldn't I be able to fling my angry self down, flail my arms and legs about and wail until I felt better? Next time a cop pulls me over, I just might try it.
Monday, October 20, 2008
I don't really see a light right now, but I am holding onto His promise.
Wednesday, October 15, 2008
I made the last two up.
My brain doesn't really like vagueness, so I feel very unequipped to handle to handle this reality. I want to know the reason why. And I want it to be a logical answer that makes sense. I think a conversation between me and diabetes would go a little something like this:
Me: Why are you causing Elise's BG to be so high?
Me: But why?
Diabetes: Just... because
Me: But WHY?
Diabetes: Because I said so. Now shut up and eat your dinner
This week hasn't been all bad, Fred took the day off today and we went to the zoo! I'm hoping to post some pics from our trip soon. Sorry again for the spew, please feel free to send me your dry cleaning bill.
Monday, October 13, 2008
Didn't really work. I know, it's only Monday, but this was truly one of the most craptastic days since Elise was diagnosed. It started off this morning when I took Elise's BG and it was almost 400. When she has levels over 250, I have to check for ketones. The result came back that she had a moderate amount, which means a call to her endo. At one point I was preparing Elise's breakfast and insulin while trying to discuss a treatment plan with the diabetes nurse AND console a very unhappy baby. I felt like a frickin' circus clown who is trying to juggle chainsaws. Badly.
The day just got worse from there as Elise's BG was even higher the second time I took it after I had given her a correction dosage of insulin. And she still had ketones. I called the nurse again and she kept asking me if I was making sure Elise was drinking water (it helps flush the ketones out). I told her that yes, I was trying to give her water, but if she had a magical way to make a 13 month old drink when she seemed to be violently opposed to it, then I was all ears. She then suggested I give her diluted Crystal Light. I politely informed her that I don't keep such a product in my house, but if she would wait a few minutes, I WOULD PULL IT OUT OF MY ASS FOR HER.
Do I sound upset? I am. Mostly because this person on the other end of my telephone didn't seem to get that you can lead a baby to water, but she will most likely fling that sippy cup at your head if she doesn't want to drink. She made me feel like I wasn't doing it properly. Oh, I see, I'm supposed to put the water in a cup and she will magically drink it for me? Here I was trying to WISH it down her throat. Silly me.
After the fun task of spooning food into a screaming baby's mouth, I put Elise down for her nap and prepared to take her to the pediatrician after she woke up. Yes, started preparing almost two hours in advance, because of the amount of crap I needed to haul with me. When she awoke I threw her in the car and drove like a mad woman to get to the appointment on time. Two hours, a few tests, and much poking and prodding later; we were on our way home.
More spooning food into a screaming baby's mouth, and Fred finally makes it home. I am wiped. I am mad. I am upset. I am sad. I also don't know how much more of this I can take. There was some good news though... Elise's ketones were eventually negative. So there's that. At least I can hold onto the fact that one thing did go right today.
Sunday, October 12, 2008
Mandatory Nap time
This alone would be enough for me to want to be baby again. What? You seriously want me to go and lie down two to three times a day for an hour or so at a time? Let me get this straight... I get to sleep at night AND during the day? And the more I sleep, the happier you are? Gimme my blankie and I'll see you in a few. And please try and keep it down.
Making a Mess... and Getting Away With It!
I have this friend who refers to her kids as natural disasters. I won't use their real names, but her nicknames for them are Hurricane Hank and Earthquake Eva. Little 'Cane and 'Quake came over a few weekends ago and truly lived up to their nicknames. It seriously looked like a giant had picked up my house, shook it around so everything fell out of where it belonged, and then set my house back down again. Not that I minded, it was fun to watch the kids enjoy themselves. My point is this... after the kids were done creating chaos, who were the ones picking up after them? Their parents, of course! At the end of the day, almost every cupboard in my kitchen has been opened with at least one item taken out. And I dutifully follow behind Elise and put it all away, chuckling to myself that it's cute how she is so curious. If you do that as an adult, they call you a slob. Not fair.
What a Cute Wittle Baby!
When was the last time someone (besides your spouse/significant other/person in your life who is obligated to tell you) called you cute, precious, adorable, etc? Not that I'm all that hung up on looks, but I think it would be nice if from time-to-time a perfect stranger were to come up to me in the grocery store and tell me, "You are just the most darling thing I have ever seen in my life!" I think we could all use a compliment like that.
I have some more, but didn't want to let this post get so outrageously long that nobody would read it... stay tuned for part 2!
Saturday, October 11, 2008
It has been a very tough two and a half weeks. Poor Elise's BG (blood glucose) levels have been sky high, between 300-450 (her normal range is 100-200). And it's affecting her badly.
Yesterday, she was walking around and all of a sudden, she just froze. Her shoulders hunched and all her muscles stiffened. Then she let out the most agonizing cry I have ever heard. It pierced my heart and I went over to her to see what had happened. She wrapped her arms around my neck and as I picked her up, she started arching her back and writhing in pain. I soothed her and calmed her down, then decided to check her sugar levels (making sure she wasn't upset as this can affect the results). She was at 428.
No wonder she was in pain. High levels can give you headaches, stomach aches, and make you hungry. Unfortunately she has been running high for almost three weeks now and every time we up her insulin, her BG goes up too. I haven't seen a normal number in a long time.
And our endo (endocrinologist) hasn't been much help. The problem with Elise being so young is that a low BG is much more dangerous than a high. So they have to increase her insulin slowly, over time. But meanwhile I have to care for a hurting child, and I have no way to make her feel better. Very difficult for an admitted control freak like myself.
But that's a whole other post for another day. Meanwhile, could you pray for my little girl? I just want to figure out how to make her to feel better again. The shots, the counting carbs, the blood sugar tests; I can handle those. Watching her in pain is breaking my heart.
Wednesday, October 8, 2008
Amid all the craziness of September, I forgot to post that Elise took her first steps (about 4 of them) on September 17. After that, there was not a whole lot of walking (I guess she figured been there, done that... thank you very much!), but these last few days, you just can't stop her! After many, many attempts to catch it on video (it was so funny, she'd be walking along, and as soon as we would turn on the camera, she'd plop herself down and start crawling), on Monday, we finally were able to record her.
Monday, October 6, 2008
So this morning I go in around 7:00. I put my hand on her chest, and she quiets down right away. Because I'm so tired, I neglect to do the shushing thing. After standing there for about a minute, I start hearing a "shhhhhhhhhh" coming from the crib. It continues for about another minute until she falls asleep.
I guess we've taught her well...